The Story of Jack Petty
It is amazing how in one instant your life can change forever. There is no going back and at times the future seems dim. Yet in that instant you learn how very precious each day is. You learn to live in the now and cherish each moment that you are able to spend with your child. The day our son, John Michael Petty or Jack as we prefer to call him, was born was a day we will never forget. The days to follow will also be engrained in our minds forever. Along the way Jack had taught us what it means to be a champion and to never give up no matter what is thrown at you. More than anything Jack has truly taught us what life is really all about.
Jack was born on
In the days that followed we determined that Jack would be sent to
Jack spent his first few days in the PICU while waiting for his surgery. We were able to hold him and feed him and cuddle with him as much as we wanted. The staff at UIHC made us feel so comfortable. We loved having a private room and being able to be with Jack as much as we wanted. The nurses, from the start, were so good to all of us. Each night when my husband and I would walk back to the Rossi House, where were fortunate enough to stay, I knew that we were leaving Jack in the excellent hands of some very skilled nurses. They cared for him as if he was their own.
Jack’s first surgery, the BT Shunt, was performed on
Within 45 minutes Jack was hooked up to a portable heart and lung machine known as ECMO. Dr. Law and Trudy Pierick came in to talk to us about what was happening. It is amazing that just when you feel like giving up there are people who will keep fighting for you. That was when I realized that there are really angels on earth. The days that followed had their ups and downs but somehow we made it through. Jack was able to successfully come off the ECMO machine and had a good chance for a full recovery.
During our 38 day stay at UIHC many more angels came in to our lives. Hundreds of people across the
The day we got to take Jack home, June 15, was one of the most exciting and terrifying days of our lives. We quickly got into a routine and life seemed to be settling down a bit. It was so wonderful to be home as a family again. Our first child, Luke, was approaching two, and he quickly fell in love with his brother. Luke handled the entire situation like a champ, and I am convinced that one day he will be able to cope with any thing that comes his way. We learned how to give Jack shots, draw up his meds, and run his feeding tube. These were all things we never would have dreamt we would need to learn how to do. But it quickly became like second nature to us.
After Jack’s August cardiology appointment in
This time we were in and out of the hospital in 10 days, our shortest stay yet! Jack flew through his second surgery. We were able to spend some time on the beautiful new peds floor. What a treat!! We also caught up with a couple other heart families who were also back in
Jack did very well at home following his second surgery. He no longer needed his feeding tube and was a very happy baby. However, in late September we started to see a change in Jack’s appetite. He wasn’t eating well and was throwing up a lot. An appointment was made with a GI doctor in
Jack’s thoracic duct had been nicked during his second open heart surgery and he developed a leak. So, we spent another 38 days at
While in the hospital I learned how valuable therapists and Child Life Teams can be. Along with the excellent care given to him by the doctors and nurses, Jack had physical, occupational, and speech therapists checking in on him and making sure he was developing as he should be. Child Life would bring him toys to keep him busy and entertained. The music therapist even stopped in to give Jack a concert or two. Jack was always happy during his stay and once again taught me to stay positive and to never give up.
Since our stay in
We are learning to accept whatever life throws our way. When Jack was at his sickest of days all I longed for was the chance to show him how much I loved him and wanted him in our lives. Having the opportunity to do this is one of the greatest gifts of all. I want Jack to know how much he has changed my life and how hard I try to be the very best mom I can be. Some days are easier than others but that is life. I thank God that we have been able to be in two exceptional hospitals with amazing people who were able to give Jack the care that we could not. Not only is a Jack a champion in my heart but so are all those who have been on this journey with him.
If you would like to find out more about Jack’s Journey you can go to:
www.carepages.com and type in JacksJourney
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